Revolutionizing Health Data Uptake: Ireland

In Ireland, the health data scene has strengths in NGS implementation but lacks centralized regulation for data sharing. The EHR system needs standardization, and GDPR compliance makes pseudonymization complex. Despite this, Ireland shows confidence in its data infrastructure. It shares data nationally and somewhat cross-border, using genomics for both clinical care and research. There’s potential for an integrated health system, better genetic data evaluation, and increased emphasis on health literacy. The focus remains on integrating genome data into records, informing patients before and after NGS testing, and refining practices in the Irish Genomic Data Infrastructure (GDI) hub. Ireland’s health data landscape is robust but requires regulatory and infrastructural improvements.

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