Croatia emphasizes the importance of national registries in collecting public health data, accessible through their public health information system. However, while they share research data, NGS data from patient testing isn’t shared. The country lacks an overseeing national agency and a universal data-sharing protocol, and although pseudonymization is feasible, it isn’t consistently implemented. Croatia links clinical data to genomic information, but more coordination among laboratories for genetic testing standards is essential. While genomic data are used in clinical trials and research, better access and regulation for genetic testing services are needed.

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