Revolutionizing Health Data Uptake: Belgium

Belgium boasts a supportive environment for routine data sharing, particularly in cancer research. The Belgian Cancer Registry systematically collects data on all cancer cases, enhancing the country’s data infrastructure. However, while secure data-sharing mechanisms exist, linking data to electronic health records isn’t uniformly available. Although Comprehensive Cancer Centers offer extensive information to patients post-NGS testing, there’s a need for increased health literacy, especially concerning precision medicine and genomic testing. Genomic data in Belgium serves both research and clinical trial purposes, aligning with initiatives like the 1+ million Genomes Initiative, which aims for extensive data collection for research and personalized medicine.

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