Lighthouse Initiative On Personalized Medicine

The Lighthouse Initiative on Personalised Medicine through Member States and multi-stakeholder collaboration would drive policy, regulatory, research, and innovation activities to establish a European-wide Data ecosystem for personalised medicine.

The initiative, supported by EAPM, will set up and operate a Europe-wide ecosystem for personalised medicine, able to aggregate, share, and analyse millions of data points. It would make this data and analytic tools available to hundreds of researchers and healthcare professionals, and it would develop a business model that incentivizes data donation and citizen participation.

The Lighthouse on PM could:

  • provide a Data place through a virtual platform—intensive discovery;
  • make available cancer genomes and ancillary data and put in place mechanisms to incentivize data contributors;
  • provide advanced bioinformatics tools while optimizing genomic pipelines for performance accuracy, and provide an environment for the clinical deployment of genomics;
  • provide a platform for public health genomics and link biobank infrastructures while meeting the diversity of systems, data formats, and interoperability;
  • ensure governance, including quality assurance, security, and patient confidentiality;
  • encourage cooperation between healthcare systems across the European Union;
  • help to improve investment in research while driving innovation across the EU;
  • provide a platform for saving millions of euros by, for example, using data and the associated technologies to ‘treat’ and monitor patients at home rather than in expensive hospital beds;
  • contribute to improving (and, in many cases, saving) the lives of a potential 500 million patients across 28 Member States

For more information on the activities of this initiative, please contact Denis Horgan, Executive Director

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