PUBLICATIONS / RESEARCHES
European Parliament, Strasbourg: December 16th: Details of the General Data Protection Regulation are about to be made public and the Brussels-based European Alliance for Personalised Medicine (EAPM) welcomes the inclusion of many suggestions and recommendations it has made during the process.
The Alliance has contributed hugely to a piece of legislation that saw around 4,000 amendments to the original draft as it developed and changed. Now the ‘trilogue’ of European Parliament, Council and Commission have reached agreement and its impact in the arena of health, and especially health research, will be immense.
Proposal for a Regulation of the European Parliament and of the Council on the protection of individuals with regard to the processing of personal data and on the free movement of such data (General Data Protection Regulation) [first reading]
Yesterday (Monday 7 December) Luxembourg, the current holder of the EU’s rotating presidency, unveiled its long-awaited Council Conclusions on personalised medicine.
While these are, of course, merely recommendations and invitations to Member States to act in certain areas, and carry little political weight, they have been welcomed in many quarters as a significant step forward in pushing the agenda in this exciting new field.